• Inborn Errors of Metabolism Collaborative
• Improving Outcomes for Individuals with PKU
• QUEST: IBEM with Uncertain Clinical Consequence
• Traditional Versus Simplified Diet for Phenylketonuria: Evaluating the Risks and Rewards

The IBEMCSN has developed a series of training webinars for Patient Partners. Visit our YouTube channel to view them. The series includes:

Webinar 1: Introduction to the Inborn Errors of Metabolism Stakeholder Network (IBEMCSN)

Webinar 2: Advocacy and Partnering with Practitioners

Webinar 3: How to be Effective in Meetings and the Three C’s

Webinar 4: Introduction to Research for the Non-Researcher