- Inborn Errors of Metabolism Collaborative
- Improving Outcomes for Individuals with PKU
- QUEST: IBEM with Uncertain Clinical Consequence
- Traditional Versus Simplified Diet for Phenylketonuria: Evaluating the Risks and Rewards
The IBEMCSN has developed a series of training webinars for Patient Partners. Visit our YouTube channel to view them. The series includes:
Webinar 1: Introduction to the Inborn Errors of Metabolism Stakeholder Network (IBEMCSN)
Webinar 2: Advocacy and Partnering with Practitioners
Webinar 3: How to be Effective in Meetings and the Three C’s
Webinar 4: Introduction to Research for the Non-Researcher