Workgroups

The Inborn Errors of Metabolism Collaborative (IBEMC) is a group of clinician researchers from metabolic centers across the US. The research team includes genetic-metabolic disease specialists, care coordinators, research coordinators and other key staff. Each partner center maintains IRB approval; actively enrolls subjects and enters data, and encourages research and publication related to the Inborn Errors of Metabolism Information System (IBEM-IS). The IBEMC meets monthly to provide expert opinion on data elements and research proposals; evaluation and establishment of data best practices including workflows; standards and compliance; and data access, sharing and security.

Log-in to the IBEMC SharePoint site here: IBEMC SharePoint
If you do not have a user name and password, or have lost your log-in information, please email info@ibem-is.org